Thematic Seminars NEDS Conference 2024
Anxiety, body and motherhood: Clinical approaches to eating disorders in pregnancy and the early stages of maternity
Chaired by Bente Sommerfeldt, Clinical Psychologist, Norway.
Description: There are well-known health risks both for mothers and babies. The incidence of eating disorders among pregnant and new mothers are significantly higher than previously known and increases during the first year after birth. Eating disorders are often linked to the cognitive and emotional preoccupancy of control. Pregnancy and birth do in many respects represent a loss of control. Eating disorder often go undetected by first-line health services. Identification of this particular group of women can be difficult. The ego syntonic nature of the disorder with the feeling of shame experienced by women with eating disorders, can lead to reluctance to disclose their disorder. Moreover, lack of training and knowledge about ED among healthcare professionals can lead to underestimate the prevalence of ED symptoms.
Purpose: In this workshop we will pay attention to the importance of eating problems during pregnancy and postpartum. We will discuss how pregnancy and the postpartum period can complicate an eating disorder, how to address it and how to adapt help and support. We will discuss how pregnancy can both be a period of risk and an important window to change. We will give some concrete examples on what these mothers themselves experienced as useful help or what could have helped them and their babies best through these periods. The understanding on how women experiences pregnancy is important for us to be able to support and prevent ED relapses or the onset of eating disorder – hence “two for the price of one”.
Program:
How do we teach pregnant women with ED to tackle the fear of weight gain during pregnancy and after birth?
Charlotte Sollid (Denmark)
Midwife, cognitive behavioral therapist
Dept. of Gyneacology and Obstetrics
Aarhus University Hospital Skejby
Eating disorders and perinatal phase: Women’s perspective on help and support during and after birth
Cecilie Brundin Pettersson (Sweden)
Research student
Dept. of Medical Science
Uppsala University/Center for Clinical Research
Eating Disorder Unit in Region Dalarna
Trajectories of severe eating disorders through pregnancy and early motherhood
Bente Sommerfeldt (Norway)
Specialist in clinical psychology
PhD/University of Oslo
Academic director/Institute of Eating Disorder
Long-term outcome of eating disorders
Chaired by Associate Prof. Gry Kjærsdam Telléus, PhD, Clinical Psychologist, Denmark
Mental capacity, decision making and the association with outcome – a longitudinal study in adults with anorexia nervosa
Unna N. Danner (Netherlands)
PhD, FAED,
President Academy for Eating Disorders,
Senior Researcher, Altrecht Eating Disorders Rintveld
Outcomes in people with eating disorders
Anna Keski-Rahkonen (Finland)
Professor of Mental Health, MD, PhD, MPH
Department of Public Health
University of Helsinki
Longitudinal outcome in patients diagnosed with Anorexia Nervosa as Children and Adolescents
Gry Kjærsdam Telléus (Denmark)
PhD, FAED,
President-elect Academy for Eating Disorders,
Associate Professor, Senior Researcher,
Aalborg University Hospital and Aalborg University
Eating disorders have profound long-term effects on individuals’ physical and mental health. Long-term recovery from an eating disorder is a complex and ongoing process. It often requires continued therapy and support to address underlying psychological issues, early intervention, and a comprehensive, multidisciplinary approach to treatment. The long-term effects of eating disorders are extensive, affecting physical health, mental well-being, and social and occupational functioning. A holistic approach to treatment and ongoing support is essential for mitigating these long-term consequences and fostering sustained recovery.
Being a relative of a family member with an ED
Chaired by Raymond Valdes, Sweden
Siblings’ and parents’ perspectives on intensified family-based treatment for anorexia nervosa
Jan-Vegard Nielsen (Norway)
PhD, Clinical psychologist,
Regional Section for Eating Disorders (RASP), Oslo
Being a child with a parent with eating disorders
André Lange (Sweden)
Child and adolescent psychiatrist, PhD student,
Eating Disorder Service, Region Halland
Being a partner to a person who has an eating disorder
Raymond Valdes (Sweden)
Licensed psychotherapist, Teacher/supervisor,
Stockholm’s Center for Eating Disorders
Evidence-based methods are the first choice of treatment for those suffering from an eating disorder. Although helpful for many, it is far from sufficient for all. Often, the ones who stand closest to those with an ED are their loved ones. Many times, things will be uncertain, and there could be many years, even decades, when relatives have to cope with the subjective and objective burdens. Relationships could also be affected over time in terms of anxiety, worries, unbalanced family relationships and mixed emotions around the ED. Giving insight into relatives’ perspectives is the core focus of this seminar. We will provide presentations focused on loved one’s perspectives on the eating disorders impact on their lives. Being a relative could be of any age and generation, and what do we as a field know of the context in which our treatment models have an impact? The different narratives and experiences of relatives will be presented in three different presentations, with discussions with the seminar participants about how, when, or why to engage relatives in treatment. A review of current literature will be presented as well.
Eating disorders and autism: co-occurrence and strategies
Chaired by Prof. Anna Keski-Rahkonen, MD, PhD, Finland
Autism and restrictive eating disorders: overlapping characteristics
Emma Saure (Finland)
Psychologist (MA), Master of Neuroscience (MSc), PhD student
Department of Psychology and Logopedics, Faculty of Medicine
University of Helsinki
This session will focus on the shared neuropsychological characteristics of anorexia nervosa and autism based on an ongoing PhD project. Dr Saure will introduce these characteristics, discuss how these contribute to eating disorder symptoms, and discuss how these characteristics are related to the severity of anorexia nervosa and how these may complicate treatment.
How do you deal clinically with co-occurring restrictive eating disorders and autism?
Mette Bentz (Danmark)
Clinical Psychologist & Supervisor, PhD
Child and Adolescent Mental Health Centre
Mental Health Services in the Capital Region of Denmark
Dr Bentz will share clinical and research experience on restrictive eating disorders and autism based on her work with children, adolescents, and families. She will also share information on Professor Kate Tchanturia’s PEACE Pathway for Eating Disorders and Autism. The session is applicable to all age groups.
Avoidant-restrictive food intake disorder (ARFID) and autism: strategies and resources
Anna Keski-Rahkonen (Finland)
Professor of Mental Health, MD, PhD, MPH
Department of Public Health
University of Helsinki
Selective eating and sensory sensitivities are almost a universal feature of autism. Some autistic people also develop ARFID. We will discuss typical features, diagnostic tools, mitigating strategies, helpful resources, and outcomes. The session is based on Dr Keski-Rahkonen’s extensive experience in working with neurodivergent young people and adults.
Challenges in the treatment of children and adolescents with ED
Chaired by Mette Bentz (Child and Adolescent Mental Health Center, Copenhagen University Hospital – Mental Health Services CPH)
Variations of outpatient family-based treatment are recommended as the first choice of treatment for children and adolescents. However, outpatient treatment is not always efficient, and parents are not the only factor influencing their child’s mental health, rendering parents feeling powerless, and the presence of comorbid psychiatric disorders may interfere with response to FBT treatment. Lastly, increasing evidence points to the importance of early detection and easy-to-access intervention, but there still is a scarcity of models for early intervention for young people. This symposium will thematize seemingly quite different aspects of the treatment of children and adolescents, addressing an array of challenges and inviting joint discussions on adapting our services to the needs of families.
Program:
Social media, self-harm and eating disorders in children and adolescents: what should parents and therapists know?
Lotte Rubæk (Copenhagen, DK)
Psychologist
Head of Team for self-harm
Broadening the reach of family-based treatment (FBT): Addressing comorbidity in the context of FBT
Mette Bentz (Copenhagen, DK)
Psychologist
PhD
Early detection of young people with anorexia nervosa: a model for cooperation between primary and secondary care to improve early access to FBT treatment
Ester Espeset (Haugesund, NO)
Psychologist
PhD